Terms & Conditions

Last Updated: August 20, 2021

SurveyEngine began as a data collection service in 2001 for Health Researchers at the Centre for Health Economics Research and Evaluation at the University of Technology Sydney.

We understand the importance of protecting personal information which you can find more about here: https://community.surveyengine.com/privacy

You can also find your legal rights within the European General Data Protection Regulations (GDPR) here: https://gdpr-info.eu/

This Site is owned and operated by SurveyEngine GmbH (“company”, “us”, “we”) and registered in Berlin, Germany with company registration at Amtsgericht Charlottenburg, Berlin, HRB 181422 B.

The offices are located at Viktoria-Luise-Platz 7, Berlin 10777, Germany. We may be contacted at via participants@surveyengine.com or through the contact information on our corporate website at http://surveyengine.com.

1. Acceptance of Terms and Conditions

  1. We may update these Terms and Conditions in the future. If this occurs, you will be notified within your account the next time you login or via email. If you do not agree with any changes you should cease using or accessing the Website immediately.
  2. We may update these Terms and Conditions in the future. If this occurs, you will be notified within your account the next time you login or via email. If you do not agree with any changes you should cease using or accessing the Website immediately.

2. Membership

2.1 In order to join the SurveyEngine Patient Circle, you must be at least 18 years old and must fulfil at least one of the following criteria:

Patients: You are a patient (diagnosed by a medical professional) with a medical condition. We reserve the right to verify the information you provide using the documents you upload or by contacting you to complete a phone-based eligibility assessment with one of our trained moderators. Patients and Carers are able to complete surveys and research activities as well as being able to submit content to the Condition Q&A and refer other users.

Carers : You care for for someone else who is a Patient (above).

Doctors or Nurses: You are a qualified and registered physician or healthcare professional. Physicians/Healthcare professionals are able to complete surveys and research activities as well as being able to submit content to the Condition Q&A and refer other users.

Others: Users who do not match the criteria specified for the other user types can sign up under the ‘Everyone Else’ category. All users registered within the ‘Everyone Else’ category can refer other users, so the referred users can earn money for themselves and raise money for charity.

For more information about how we use your data and how it’s protected please see our privacy notice at https://community.surveyengine.com/privacy

2.2 By joining the SurveyEngine Patient Circle, you agree to provide accurate and true information about yourself and your related condition/s (or the conditions of the people you care for or that you or your organisation treats or supports). This includes all information you provide as part of the registration process, Condition Q&A, research activities, surveys and any other information that you submit to SurveyEngine Patient in any medium. You also agree to keep all of your personal details up to date within the members’ area. In the event any of the information you have provided is incorrect, inaccurate or incomplete we reserve the right to suspend or terminate your account. In the event you are found to have submitted inaccurate information as part of a paid survey or research activity then, in addition to suspending or terminating your account, we reserve the right to cancel any or all incentives that are outstanding to you.

2.3 Each member must have a maximum of one account and they must not permit any third party to access this account without the express written permission of SurveyEngine GmbH. It is the user’s responsibility to ensure their login details and password are kept strictly private and are not shared with any third parties at any point. Duplicate accounts will be permanently closed and we reserve the right to cancel any outstanding incentives within these duplicate accounts. In the event of a dispute we may require proof of identity.

2.4 You agree to notify us as soon as possible if you suspect there has been any unauthorised access to your account, or your account details have been compromised. In the event of a suspected breach we reserve the right to suspend your account until we are satisfied there is no further risk of unauthorised access.

2.5 Members can opt out of the SurveyEngine Patient Circle notifications at any time or close their account from within the members’ area or by email to participants@surveyengine.com.

3. Payments and Donations

3.1 The amount of incentive (or “incentive payments” / “incentives”) offered for participation in a SurveyEngine survey or research activity will be notified to Members via official communications and will always be made clear before the start of a study. The method of payment and percentage of their incentive payments that the member would like to donate to charity (and the related charity) may changed each time you take part in a study.

3.2 If you fail to correctly follow any required instructions during a paid survey/research activity or you provide incorrect, inaccurate or incomplete information then we reserve the right to withhold your incentive payment (and you will have no recourse against SurveyEngine GmbH in this instance).

3.3 On successful completion of a survey a confirmation screen will be shown to you at which point the survey will be deemed complete.

3.4 If a Member is terminated from a survey or research activity during the initial screening stage (i.e. they do not meet the eligibility requirements for participation that are checked at the beginning) they will be informed of this and will not be allowed to proceed with the survey or research activity. No incentive payment will be paid when this occurs, or a small proportion of the full incentive. This will be stated up front.

3.5 If a Member doesn’t fully complete the survey or research activity before it closes, then no incentive payment will be made. This will be stated up front. All surveys and research activities are open on a first come, first served basis, so as soon as the required quotas are reached the survey will close automatically. As a result, we recommend users complete surveys in one sitting to reduce the likelihood of this occurring.

3.6 By registering with the SurveyEngine Patient Circle, you agree to donate at least 10% of your incentive payments to any of the Charities or Support Organisations that are registered with the SurveyEngine Patient Circle. You can update your nominated charity in the members’ area at any time and you will always be prompted to confirm how much of your incentive payment you would like to donate (and how you would like to be paid) before receiving payment for completing a study.

3.7 We transfer your donations to the Charities and Support Organisations once a quarter on your behalf, once the related project is closed and once the charity/organisation has reached the minimum earnings threshold (100 GBP / 100 USD / 100 EUR or an equivalent to the GBP amount in other currencies). Your donation will only be made provided you have completed all requirements for that study and the study has been closed for at least 4 weeks prior to the payment date (otherwise the donation will be made the following quarter). In certain instances, we may pay donations to charities earlier than specified or before the organisation has met the minimum threshold at our sole discretion. If you have provided incorrect, incomplete or inaccurate data as part of the related survey/research activity, we reserve the right to withhold your payment and associated donation as specified in 3.2.

3.8 All incentive payments and referral fees are paid to you as described in the ‘Your Payment Information’ section of our Privacy Notice (you can specify which payment method you prefer within the members area at any time and will be prompted to confirm this after you take part in a study, prior to payment). Payments are made every Friday and you will receive all related payments between 1 – 3 weeks after the payment was earned (or occasionally earlier than this at our sole discretion). A study incentive is ‘earned’ when you complete the related study, a referral incentive is ‘earned’ when the referred user successfully completes the related study and the related study has closed.
It is your responsibility to ensure your payment details are correct and up to date. In the event an incentive payment is sent to the wrong place (for example it’s sent to the wrong bank account or an Amazon voucher is emailed to the wrong address) we will endeavour to have this returned (and if we are successful this will be transferred to you minus any fees). However, this is not guaranteed and we offer no compensation if this occurs due to you providing incorrect payment information and accept no liability if the payment cannot be recovered.
3.9 Any surveys, research activities, competitions or prizes, that include the transfer of additional Personal Data that is not covered by our Privacy Notice (either as part of a survey or research activity, or in any other capacity) will have their own terms and conditions or consent agreement which will need to be agreed to separately in advance of participation.
3.10 We reserve the right to change the available surveys, research activities and referrals that users can earn incentives from and vary the incentive levels and referral fees at any time with no prior warning (excluding surveys or research activities that have already been started, which will always pay the incentive or referral fee that was presented to the user prior to their commencement).
3.11 Incentive payments may not be transferred to other member accounts and cannot be paid to members via any method other than those specified within the ‘Your Payment Information’ section of our Privacy Notice (or as specified for the survey in question).
We reserve the right to terminate any membership account that has not been accessed or used in any significant way for a period of at least 120 days. This includes accounts that have not completed a survey or research activity or asked or answered questions in the Condition Q&A during this period. In this event we will attempt to contact you using the email address or phone number associated with your account. If we are unable to contact you and your account remains inactive then your account may be terminated as described within the ‘Controlling Information About You’ section in our Privacy Notice.

4. Intellectual Property

4.1 Except as may be explicitly stated, all intellectual property in the Website or any of its content including but not limited to all copyright, trade marks and names, service marks, text, graphics, branding, themes and website design are the property of or licensed to the owners of the Website or are otherwise used lawfully and with authority.

4.2 You agree and acknowledge that in accessing the Website you do so only for your own personal use and benefit and that, except where expressly permitted, none of the content contained on the Website may be downloaded, copied, reverse engineered, sold, broadcast, distributed or used for any commercial purpose. You may however download and copy content from the Website for your own personal and non-commercial use (where this use is not otherwise specifically excluded).

5.Confidential Information

5.1 You undertake to treat as strictly private and confidential all information you access or receive from us whether from our website or otherwise relating to any survey or research activity in which we are involved and not to disclose such information to any other person or use it yourself except as authorised or permitted by us in writing.

5.2 This obligation shall continue without limit of time but shall not apply to any information which you are required to disclose by law or any regulatory authority or which otherwise than by reason of any breach of this provision shall be available to the public generally without significant cost or effort.

6. Content and Contributions

6.1 We may from time to time change or remove any part of the Website or its content or any part thereof without prior notice and no liability is accepted for any such changes.
6.2 None of the content of the Website is advice or a recommendation, medical or otherwise, and may not be relied upon by you in making or reaching any judgement decision or conclusion.
6.3 Where the Website or other methods provided by SurveyEngine GmbH permits you or any other user to contribute content in any form (“User Generated Content”), including but not limited information you submit via our website, questions and answers in the Condition Q&A. recommendations, condition and medication history and any other information you have submitted, the following shall apply:

  • User Generated Content may be displayed publicly on the website (such as user recommendations and Condition questions and answers) or elsewhere, however this is shown in aggregated form and we shall not create any material for display containing identifiable Personal Data of yours without your express written consent.
  • We reserve the right to control User Generated Content which appears publicly on the Website and may remove without prior notice any User Generated Content which, at our sole discretion, appears to us to be unfit or inappropriate for any reason.
  • While we will use reasonable and proportionate endeavours to monitor User Generated Content we accept no responsibility whatsoever for such material and for any distress, injury or damage which it may cause.
  • You grant SurveyEngine GmbH a non-exclusive, worldwide, perpetual and irrevocable right to use, distribute, reproduce, publish, translate, sell and create works from and display anonymised User Generated Content in any form and / or to incorporate it in other works in any form, media or technology. Please see our Privacy Notice (community.surveyengine.com/privacy) for more information on how we protect your data.

7 Links to Third Party Websites and Resources


7.1 The Website may contain links or references to external websites or resources which are owned, controlled or hosted by third parties. Any such linking or reference does not constitute an endorsement of, claim to ownership over or assumption of responsibility for any of the content of these external websites or resources by the Website or the owners of the Website. We accept no liability over the use of any external website or resource linked to from our website. Each such website will have its own privacy policy for which we are not responsible and which you should check yourself.

8. Disclaimers and Liability

8.1 Whilst we operate the highest level of security for all data (and most survey results are stored independently of any Personal Data), we make no guarantee or warranty of any kind, whether express or implied as regard to any of the following:

  • The uninterrupted or stable availability, accessibility of the Website or any of its content.
  • The suitability or compatibility of the Website or any of its content with any computer system, software or information storage or retrieval system.
  • The security of the Website or its content, or of any information which you submit to the website.
  • The absence of virus or malicious software or machine readable code anywhere on the Website or in its content.

8.2 We disclaim absolutely and to the fullest extent permitted by law any and all liability for all loss or damage of any kind which may be caused by using or accessing the Website, its content or by taking part in surveys or research activities or making use of our services, howsoever caused.

8.3 Nothing in these terms or conditions shall be construed or interpreted as to exclude or limit liability for our breach of Data Protection legislation or regulations or for death or personal injury which results from the negligence of the owners of the Website or any of their agents or employees.

9. Indemnification

9.1 You hereby agree to indemnify and keep indemnified SurveyEngine GmbH (including any assignees or successors and any of their directors, shareholders, employees or representatives) to the fullest extent permitted by law, against any loss, damage or liability (including legal fees) which results in any way from your use of the Website or as a result of a breach by you of this agreement or failure to abide by any of its terms including any use or breach by anyone accessing your membership account, whether with your authority or not.

10. Healthcare Professional Payment Disclosure requirements

10.1 If you are a doctor or a nurse, you acknowledge and agree that SurveyEngine GmbH may be required by applicable law and regulation to disclose the existence of rewards redeemed, the terms of this redemption including financial terms, and the subject matter associated with each payment.

10.2 Our reward program is administered in accordance with German law. Under these regulations, certain payments may be subject to reporting to the respective bodies, who will make the details available for public viewing on its website.

11. Adverse Event Reporting Requirements:

11.1 You acknowledge and agree that SurveyEngine GmbH may be required by applicable laws and regulations to follow-up with you if you mention an Adverse Event in the course of your participation in a specific survey or research activity engagement. We are committed to supporting our clients and the pharmaceutical manufacturers who sponsor such research engagements in responding to requests for follow-up on Adverse Events within the timeframe required the regulations which govern such matters.

11.2 By participating in our community, you are agreeing to be contacted via phone and/or email outreach by members of our team in order to follow-up for additional details in regard to the Adverse Events referred to by you within a survey or research activity.

11.3 You do have the right to refuse to provide additional details in regard to the Adverse Event including any Personal Data; however, a refusal does not override the requirement for us to report on the

11.4 Adverse Event mention to our clients and the pharmaceutical manufacturers who have sponsored the research engagement.In case of a refusal, your Personal Data will not be released as part of the reporting process.

12. Communications from the Site:

Study Notifications: By registering you are agreeing to be notified about studies that are relevant to you, based on the information you have provided. The frequency of these is dependent on the information you have entered, your location and the studies that are currently available. You can opt out at any time.

Service Notifications: We will send you service-related announcements, which are not promotional in nature, on occasions when it is necessary to do so.

Customer Service: Based upon the information you provide us, we will communicate with you in response to your enquiries, to provide the services you request, to fulfil payment requests, and to manage your account.

Newsletters and Informational Emails: We will send you newsletters and informational emails approximately once per month or less frequently, if you have opted-in to this communication method.

13. Jurisdiction and Severability

13.1 All clauses, sub clauses and parts thereof shall be severable and shall be read and construed independently. Should any part of these terms and conditions be found invalid this will not affect the validity or enforceability of any other provision or of these terms and conditions as a whole.

13.2 These Terms and Conditions shall be construed and interpreted in accordance with German Law.

Contacting Us

If you have comments or questions about these Terms and Conditions, please contact:
SurveyEngine Patient Circle
Viktoria-Luise-Platz 7
Berlin 10777
Germany
tel: +49 30 201 692 320